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Learning
Histories
First
Breaths
In many ways, the
American Lung Association of Indiana Lung Center is still gasping
for air. A joint project of the American Lung Association of Indiana
(ALA-I) and Memorial Hospital of South Bend, the program is a pilot
for the state. Opened in the fall of 1998, its planners unanimously
agree that more work lies ahead than behind them. Yet, looking to
past ALA-I Lung Center accomplishments does provide a framework
for present and future challenges.
"It started
about two years ago, when we recognized that we were having a hard
time as an organization really impacting the lives of people who
have asthma," says Dick Beall, Executive Director of the American
Lung Association, Region I, "Someone asked if there wasnt
a way that we could really get on top of this problem. You know
there are a lot of people who have asthma," he continues emphatically,
"Its increasing in incidence every year. The World Health
Organization sees it as a world-wide epidemic. And, for the most
part, patients are not necessarily managing themselves well."
Indeed, in Indiana
alone over 320, 000 people suffer from asthma (American Lung Association).
One-third of those are children. Three times that many residents
deal with some sort of lung disease. Many of us look to statistics
like these to give us an idea of the impact of lung disease in our
communities, but the numbers themselves cant provide us with
an idea of what lung disease sufferers truly experience.
Dick Beall can.
With a box of cocktail straws in hand, he might offer an office
visitor an experience that simulates some of the effects of lung
disease. Encouraging you to close your mouth tightly around the
straw, plug your nose, and try to breath, he watches and says "Now,
thats a very mild case."
"People with
asthma," he elaborates, "even if theyre doing well
and feel good, still carry a degree of inflammation in their bronchial
tubes. If you limp because you hurt your foot, you notice the limp
for a couple of days -- but after a couple of years youve
become adjusted to limping. So, if you have trouble breathing, you
notice it right away. But after a few years you adjust. You walk
a little slower, you stoop a little bit more. If youre a kid,
you dont got out for sports, you dont play outside,
you watch a lot of TV. You become a different kind of person. So,
for the severe episodes, [asthma sufferers] pop into the emergency
rooms, or they pop into their doctors offices. Theyre
treated on an emergency basis and they feel better, but even when
they feel better theyre not really what a normal breather
is, but they get used to it...Theres a difference between
chronic and acute. When you have cancer, you act quickly because
there is incredible urgency to do something today. With chronic
diseases people just live a very low quality of life."
The
Facts on:
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Asthma
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Fourteen
people die daily because of their asthma.
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Nearly
15 million Americans now have asthma.
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The
number of new asthma cases and asthma-related deaths
has increased 40% between 1982 and 1994.
From
the American Lung Association.
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Tobacco
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6,200
children die each year in the United States due to
exposure to tobacco smoke.
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Indiana
ranks second highest in smoking among the 50 states.
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Smoking
kills approximately 27 Hoosiers each day.
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COPD
(Chronic Obstructive Pulmonary Disease) and Lung Cancer
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Nearly
16 million Americans are estimated to suffer from
chronic COPD, such as emphysema or chronic bronchitis.
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Lung
cancer is now the number one cancer in men and women.
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Cigarette
smoking is responsible for an estimated 87% of lung
cancer cases.
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The ALA -I Lung
Center was created with the idea of improving life quality for lung
disease sufferers in mind. Dick says that when asthma patients have
an "episode" -- a severe, sometimes life-threatening attack,
they are likely to seek emergency medical services and then return
home once they feel better. "What we try to do is to stop these
episodes from even happening."
The Centers
beginning stemmed from an already established connection between
the American Lung Association of Indiana and Memorial Hospital.
Pat Wise, RRT, Director of Pulmonary Services at Memorial Hospital
was a long-time supporter and Board member of the American Lung
Association. As Dick was formulating the Lung Center idea, Pat was
a person he sought out for input. "Dick had a vision of educational
opportunity and partnership with the hospital," says Pat.
The ALA-I
Lung Center was designed to:
- Give patients
the skills needed to manage their asthma;
- Reduce the debilitating
loss of life due to asthma and other lung diseases;
- Provide smoking
cessation to adults and teenagers, and;
- Cut health care
costs.
Curriculum developed
for use in the ALA-I Lung Center includes these goals:
- Increase patient
compliance;
- Reduce emergency
room visits and hospital stays, and;
- Increase physician
productivity and effectiveness.
The vision has become
a reality with the development of the American Lung Association
of Indiana Lung Center, in partnership with Memorial Hospital. A
building and staff have been devoted to the Center, and programs
are in place. Yet, as the programs developers have realized
-- this is just the beginning.
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